Help us stand side by side with
Louis & rare disease CDG
Our aim is to increase the awareness of rare diseases like CDG
Congenital Disorder of Glycosolation (CDG) is one of thousands of rare diseases that children all over the world are diagnosed with. Being rare means limited information, limited awareness and limited funding for research and support. Our goal is to increase the awareness of CDG and provide education on Louis’ and many other strong CDG warriors’ lives with this rare disease.
Tender Loving Rare
Louis’ Tribe
Find out who Louis is, who we are and our story in this CDG journey.
CDG Information
Ready to learn more about CDG? Understanding is the first step in raising awareness
Events
Check out the events we’ve hosted, what’s coming up and what’s happening in the world of CDG.